Alpha-gal Information
(AGI)

 

The Alpha-gal Information website

Webinars

Educational materials

Databases

Outreach and Events

Collaborators

Goal

Advance understanding of alpha-gal syndrome by developing educational resources and tools for patients, providers, and other key audiences.

Priority #1

Advance understanding of alpha-gal syndrome by creating and distributing educational tools and resources.

Priority #2

Develop strategic collaborations that expand the reach, credibility, and effectiveness of efforts to improve understanding of alpha-gal syndrome.

Priority #3

Catalyze coordinated inter-institutional and cross-sector initiatives to advance the understanding of alpha-gal syndrome
and inform more effective policies, programs, and practices.

Websites

Alpha-gal Alliance expands access to evidence-based information about alpha-gal syndrome through trusted informational websites serving patients, healthcare providers, researchers, journalists, and the public.

The Alpha-gal Information Website

Alpha-gal Information is the most comprehensive resource on alpha-gal syndrome and is a critical tool for patients, healthcare providers, researchers, and the media.

New visitors per year

Visits per year

Countries

Webinars

Alpha-gal Information is the most comprehensive resource on alpha-gal syndrome and is a critical tool for patients, healthcare providers, researchers, and the media.

Featured AGI webinars

Featured Collaborative Webinars

Alpha-gal Alliance broadens expand the reach, credibility, and effectiveness of efforts to improve understanding of alpha-gal syndrome by co-producing webinars with aligned organizations.

Explore and these and other Alpha-gal Information webinars.

Educational materials

Alpha-gal Information is the most comprehensive resource on alpha-gal syndrome and is a critical tool for patients, healthcare providers, researchers, and the media.

Patient-focused factsheets

These factsheets support patient education by providing clear, accessible information on AGS for distribution directly to patients or through healthcare providers.

Explore and download these and other patient-focused informational resources.

Advocacy-focused materials

These materials are designed to help advocates communicate the impact of alpha-gal syndrome clearly, credibly, and effectively.

Co-produced materials

The Alpha-gal Alliance partners with healthcare providers, nonprofits, government agencies, and other organizations to adapt, rebrand, and co-develop alpha-gal educational materials.

Databases

Alpha-gal Alliance creates and maintains a number of AGS-related databases.

Alpha-gal Information 
Publications Database

The Alpha-gal Information Publications Database consolidates peer-reviewed research on alpha-gal syndrome, along with select gray literature and publications on related topics, in a searchable database. Entries are indexed with keywords—including terms related to medical specialties, geographic regions, and categories of medical products—to support targeted searches by researchers, healthcare providers, media, and others.

Additional AGI databases

Alpha-gal Alliance maintains a number of databases, including the ones below.

Patient-Recommended Providers Database

Information on AGS experts and over 300 patient-recommended healthcare providers

Alpha-gal Syndrome Support Group Database

Information on more than 200 alpha-gal syndrome support groups

Mammalian Byproducts Database

The most comprehensive compilation of mammal-derived ingredients in existence. 

Outreach and events

Alpha-gal Alliance reaches key audiences through participation in conferences and symposia, as well as targeted provider outreach.

Direct outreach to allergists

The Alpha-gal Alliance reached 2,500 allergists attending the 2025 AAAAI annual conference with a targeted mailing of patient handouts, key statistics, and clinical support materials aimed at improving awareness and patient care.

AAAAI 2025

The Alpha-gal Alliance partnered with Pill Clarity and the Alpha-gal Foundation to share information about AGS at the 2025 AAAAI annual conference.

Conference for Food Protection

Alpha-gal Alliance is a member in the Conference for Food Protection. Founder Sharon Forsyth serves on the Allergen Committee and actively participates in efforts to provide clarification and guidance on the 2022 FDA Food Code provisions related to major food allergen labeling and to update the “Major Food Allergen Framework.”

Collaborators