The Alpha-gal Syndrome Awareness Campaign
Media outreach
Social media
Collaboration
Goal
Advance awareness of alpha-gal syndrome among the general public, patients, providers, and at-risk populations through media and social media outreach.
Media Outreach
The Alpha-gal Alliance has helped bring alpha-gal syndrome to national and local audiences through hundreds of media stories, including the examples below.
Priority #1
Advance general awareness about alpha-gal syndrome.
The incidence of alpha-gal syndrome appears to be growing significantly. Patients who are bitten can develop a severe allergy to red meat, and a few have died.
By Joe Goldstein, The New York Times
A Tick Bite Made Them Allergic to Meat
And an organ-transplant company has an unexpected solution.
By Sarah Zhang, April 25, 2022
The Atlantic
Alpha-gal syndrome is usually thought of as a red meat allergy, but it can also spur allergies to mammalian-derived ingredients like gelatin.
By Marta Zaraska, January 19, 2025
The Washington Post
‘Explosive increase’ of ticks that cause meat allergy in the US due to climate change
Unusually aggressive lone star ticks, common in the south-east, are spreading to areas previously too cold for them
By Oliver Milman, June 29, 2025
The Guardian
The Dr. Oz Show, October 29, 2019
Did you know that a tick bite could lead to a food allergy? Join Food Sleuth Radio host and Registered Dietitian, Melinda Hemmelgarn for her conversation with Sharon Forsyth, conservationist and patient advocate for the alpha-gal syndrome community.
By Melinda Hemmelgarn, October 2, 2025
Food Sleuth
Rebecca Smith, November 19, 2025
KBIA
Priority #2
Increase awareness of atypical AGS presentations, especially those that commonly lead to misdiagnosis, such as the GI presentation.
For a while, he simply ignored his GI symptoms as they progressively got worse… The situation deteriorated to the point where he had to be rushed to the ER multiple times, sure he was having a heart attack. However, the reality was far more complex.
Symptomatic
Priority #3
Increase awareness about AGS among disproportionately impacted populations and the communities that serve them.
Alpha-gal Alliance advances awareness of alpha-gal syndrome among disproportionately impacted populations and the communities that serve them, including:
- Populations in high-prevalence regions
- Rural populations
- People working in high-risk occupations, such as farmers and ranchers, professional surveyors, foresters, and park rangers
- People whose hobbies put them at risk, such as hunters, hikers, birders, and gardeners
Their saliva is making some farmers allergic to their own cattle and sheep.
The Atlantic
Social Media
While social media is not a major focus of Alpha-gal Alliance, it is an important tool for communicating with the alpha-gal syndrome community.
Priority
Provide the alpha-gal syndrome community with accurate, evidence-based information while actively addressing misinformation.
Social media metrics
Social media accounts
Followers
Social media platforms
Views per month
Viewers per month
Featured social media accounts
Alpha-gal Syndrome Research
Alpha-gal Information
Alpha-gal Lifestyle
Collaboration
Priority
Elevate voices within the AGS community and build connections with trusted voices in adjacent communities to advance shared awareness goals.
Awareness collaborators
Our awareness collaborators include patient advocates, community leaders, and other nonprofits.
Partner: Sage Scott
May is Food Allergy Awareness Month, and alpha-gal syndrome deserves more attention
Morning AgClips
